Building Research Capacity
Dysgraphia Life is working on a project called, Building Research Capacity for Patient Centered Outcomes Research in the Dysgraphia Community which is being funded by a $250,000 award from the Patient Centered Outcomes Research Institute (PCORI).
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The overall project goal is to build, engage, and educate the dysgraphia community on patient-centered research practices and prioritize research on the most important questions for people diagnosed and their families to improve health outcomes.
Key components of this project have included our Stories Sparking Science initiative and creation of the short training videos below.
In May 2024, Dysgraphia Life hosted a webinar reporting the results of the "How Do You Learn About Learning Disabilities?" survey and interviews that were a part of this project. You can view the full webinar here:
Tips for Parents & Guardians
Tips for Researchers
Based on the survey and interview results, we developed two sets of tip sheets to help researchers engage parents of guardians of children with dysgraphia and make it easier for them to participate in research projects. You can view those tip sheets here:
This engagement award project will not only help us raise awareness of dysgraphia and the large number of students that are struggling with learning disabilities in written expression, it will allow us to prioritize the research that is most important to those diagnosed and their loved ones. There are so many research needs in this community and a lot of work to do. We are thrilled to be able to partner with a fantastic group of diverse stakeholders to carry out this project.”
-- Jennifer C. King, PhD
Founder & President, Dysgraphia Life
Project Principal Investigator
Another aim of the project was to develop a prioritized list of research topics. You can find the results of that aim here.
This project is being advised by a multi-disciplinary Research Advisory Board who bring professional and lived expertise to the project.
This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EACB-26111).